Ride For Life

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RIDE FOR LIFE KICKOFF & HONOREE RECOGNITION Thursday March 18th 2010 7:00 pm-9:00 pm Lombardi’s on the Sound more...

Ride for Life 2010 May 10-May 22 East End - Long Island to Manhattan " Patients on the Move " Plan to join us!...more...

North Babylon School District Teachers Present: The "Fab Four" for 4 Concert A Night of Beatles Music to Benefit ALS Research Thursday, March 25, 2010 @ 7PM North Babylon High School Auditorium Beatles Rock Band Competition 5PM Cafeteria For more...more...

NY State Senator Kenneth P. LaValle honored Ride for Life founder Christopher Pendergast as the First Senate District recipient of the 2006 Achievers' Award at the annual "Senate Disabilities Awareness Day" celebration in Albany. Mr. Pendergast received the statewide honor in recognition of his tireless efforts as a champion for ALS. He speaks extensively to help bring awareness to the disease and raise funds for research and patient services.more...

This year, thanks to your generosity, Ride for Life funded $165,000 to promising ALS research programs. The grants were researched and recommended by a committee of ALS patients led by Norma Steck-Hess.

$55,000 for ALS TDF to continue their high tech, cutting edge work.

$42,500 for Johns Hopkins in support of the Packard Research consortium.

$40,000 for ALS Associations (through Greater New York Chapter) and its exciting work on a wide range of initiatives led by Dr. Brujin.

$20,000 for Dr. Gordon of Columbia Presbyterian Hospital in support of the first multi drug clinical trial about to begin.

$8,000 for the Muscular Dystrophy Association (through the Suffolk Chapter) in recognition of their continued research programs.

This year’s total brings to over $700,000 in research money generated by Ride for Life – patients working together to make a difference. more...

The Ride For Life’s 3rd annual Long Island Educators Cup Golf Outing held on Columbus Day was a big success raising $15,000. Teacher - golfers from Nassau and Suffolk Counties played and competed for the Educators Cup. After the scores were tallied, Patchogue-Medford Congress of Teachers won the coveted Cup taking it from the 2004 winners Kings Park Teachers Association. The Trophy will be presented at the Long Island Presidents Council’s winter meeting in Montauk. The LIPC is a group of union leaders representing Long Island teacher Locals. more...

The ALS Association issued the following statement on the Food and Drug Administration's recommendations to reauthorize the Prescription Drug User Fee Act (PDUFA). more...

Two boys whose lives have been changed forever by their dad's ALS are featured on a calendar. more...

Artists use their work to communicate their vision of the world, but Gary Wickman's paintings are about the last way he has to communicate at all. Wickman was diagnosed with ALS (amyotrophic lateral sclerosis, or Lou Gehrig's Disease), an incurable progressive neurodegenerative disease, three years ago. He is approaching its final stage. "We were watching a PBS auction that included an oil-painting set. He turned and said, 'I think I could still do that,' " said Jill Wickman, Gary's wife. In the past year, painting up to five hours at a stretch, Gary has produced dozens of small canvases.more...

Kevin Hulings is chalking up a 15th year of his own war against ALS. The disease has wasted his muscles, wiped out his voice and immobilized his body. Yet, his mind races at the speed of sound, and unmistakable glints of humor light up his eyes. When his voice succumbed to the disease, Hulings turned to technology. Now, he once again ‘‘talks’’ and argues issues.more...

Compared to years past, people who come down with Lou Gehrig disease nowadays seem to have slower disease progression and to live long. Nonetheless, amyotrophic lateral sclerosis or ALS, as the disease is known formally, is still always fatal, ultimately.more...