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  A caregiver's poem
Posted May 19, 2003 in Living with ALS

When I finish your sentence is it rude and unfair?
If I give you more then one answer to chose, do you mind or not care?

I try to make it easier for you and for me,
I am not sure my efforts are something you feel?

I feel bad when I can't understand what your lips try to say,
As I lean in, I secretly hope that my breath is okay.

The way you communicate is through your tears and your smiles,
Most times I see smiles, to carry us through 150 miles.

I will always carry a straw and a napkin too,
To help try to do what your hands cannot do.

At what point do you get angry and wish it were done?
So all the struggles are down to none.

How do you keep going and not give up hope?
And how is it that I get strength from you, to help ME cope?

I would love nothing else, but to find a cure,
Because, I am not ready to close the door.

By Amy Cryer-Hassett

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