TUCSON, Ariz., June 22, 2004 — The Muscular Dystrophy Association mourns the loss of a “shining star,” 13-year-old Matthew (Mattie) J.T. Stepanek, who died today in Washington due to complications from his rare neuromuscular disease.
Stepanek made a big impact in his short life. He was internationally known as the best-selling author of five books of poetry, as a peace advocate and as MDA’s National Goodwill Ambassador from 2002 through 2004.
“Mattie was something special, something very special,” said MDA National Chairman Jerry Lewis, who was a good friend of Stepanek’s. “His example made people want to reach for the best within themselves. It was easy to forget how sick he was because his megawatt personality just made you want to smile.
“With Mattie, there was always a silver lining. Life threw its worst at him and he responded by seeing the good. He was — he is — a shining star.”
ON THE WEB
National Public Radio's 'All Things Considered' has an audio remembrance of Mattie Stepanek and a 2001 interview. CLICK HERE to listen.
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