Tips for newly diagnosed ALS patients
Posted July 13, 2004 in Living with ALS
Will Hubben was diagnosed with Lou Gehrig’s disease in July 1998 and died in May 2004. In November 2000, Will created The ALS Research Digest, an electronic newsletter designed to provide information about the disease to the ALS community (you can click on the link to sign up to receive the newsletter via email.)
Shortly before he passed away, Will provided the ALS Association with a number of coping devices he used that helped him immeasurably.
In his tips for newly diagnosed ALS patients, Will shared what helped him along the way and some advice that he wished he had followed sooner rather than later.