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  MDA publishes new guide to living with ALS
Posted June 21, 2005 in Living with ALS

The Muscular Dystrophy Association has published a new guide for people living with ALS.

"Everyday Life With ALS: A Practical Guide" addresses the lifestyle and health issues that accompany an ALS diagnosis. The 150-page book serves as a replacement for MDA's out-of-print guide titled "ALS: Maintaining Mobility."

ALS is a progressive disease characterized by generalized weakness and wasting away of muscles. It usually leads to almost complete paralysis, and has a three- to five-year average survival.

The book has chapters on equipment for daily living, home modifications, respiratory issues, mobility equipment, exercise and more. It includes photos of assistive equipment, explanatory graphics, and a list of resources specific to ALS and the needs of people with disabilities.

"Everyday Life With ALS: A Practical Guide" is available for $15 in book form and $10 for a CD-ROM. Both can be ordered from MDA's Publications Department at (520) 529-2000, Ext. 6299, or at publications@mdausa.org.

For more information, go to www.als.mdausa.org or call 1-800-572-1717.

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