The Advocacy Department of The ALS Association (ALSA) announced that Congressmen Eliot Engel (D-NY) and Lee Terry (R-NE) introduced the “ALS Registry Act,” H.R. 4033, in the U.S. House of Representatives on Friday, October 7. A bipartisan group of forty-five Members of Congress joined Reps. Engel and Terry as original cosponsors of the bill.

H.R. 4033 is the House companion to S. 1353, introduced in the Senate earlier this year by Senators Harry Reid (D-NV) and John Warner (R-VA). The bills, which are identical, authorize $25 million to establish a national ALS registry at the Centers for Disease Control and Prevention.

If you have any questions about the ALS Registry Act or would like information on how you can advocate in support of this much needed legislation, please contact Pat Wildman at pwildman@alsa-national.org" or toll-free at 1-877-444-ALSA.