Newly Diagnosed
Here is some important information for all ALS patients, especially those newly diagnosed, to help you and your family cope with and understand the disease.
ALS Connection Patient Registry
Posted March 3, 2006
ALS Connection is a patient driven ALS registry to collect data from ALS patients in North America. It is coordinated by Dr. Robert Miller, Dr. Jonathan Katz and Dr. Catherine Madison, all of them physicians who treat ALS patients in...more...
Randy's ALS Manual
Posted March 3, 2006
ALS patient Randy Roberts has created an excellent online resource called "A Guidebook for Recently Diagnosed Persons with ALS, their Families and Significant Others." You can view the manual on your browser or download it to your computer. CLICK HERE to go to Randy's ALS Manual. more...
Tips for newly diagnosed patients
Posted February 17, 2006
Will Hubben was diagnosed with Lou Gehrig’s disease in July 1998 and died in May 2004. In November 2000, Will created The ALS Research Digest, an electronic newsletter designed to provide information about the disease to the ALS community (you can click on the link to sign up to receive the newsletter via email.)more...
Everday Life with ALS: A Practical Guide
Posted February 16, 2006
The Muscular Dystrophy Association has published a new guide for people living with ALS. "Everyday Life With ALS: A Practical Guide" addresses the lifestyle and health issues that accompany an ALS diagnosis. The 150-page book serves as a replacement for MDA's out-of-print guide titled "ALS: Maintaining Mobility."more...
A letter to new ALS patients
Posted February 16, 2006
Steve Lewis speaks from experience and his heart in this letter to newly diagnosed ALS patients, courtesy of the ALS Therapy Development Foundation. Click here to read Steve's message.more...
Free Living with ALS Manual
Posted February 16, 2006
The ALS Society of Canada has created a Manual for People Living with ALS. This excellent manual, which covers almost every aspect of living and coping with ALS, is a must-have. It is available as a free download. Click here to get it now.more...
A crash course in ALS
Posted February 16, 2006
Here is some basic information about ALS to help you and your family better understand the disease.more...
